Hi everybody...this is my first post ever in my life!! Just recently diagnosed...wanted to meet some people I can talk to without feeling like I sound crazy. Just finished solumedrol due to 2nd episode of optic neuritis, discussing different treatment options with dr. now...any input on anything regarding ms is appreciated!! I don’t really know anyone with this "Special gift" except me!!
I was only diagonised in Dec 2007 with the Remittance form. I have only ever had one episode and are on betaferon injections every two days that I self inject, not to bad. I have never had problems with my sight, thank lord, I would hate that. If you have any questions email. I live in Australia, all the best.
Im new here too and I would also like to meet others like me. Im 23 years old and Im from Finland. Im waiting for the diagnose (did i write it right?) but according to the mri I have ms.
Ive had several symptoms like optic neuritis and numbness. I dont know how I feel about this but Im kind of confused.
Hi, I am also a mother of three and am waiting a diagnosis. I had a positive VEP test. My doctor told me I couldn’t be diagnosed with this alone. I have had tingling in my hand and feet for almost three years. I had one lesion on my spine that has disappeared. How did you get a diagnosis? Did you have other lesions?
First post like many others. Diagnosed 4 months ago in record speed, twelve days from visit to specialist. Head is still reeling. I was started on Betaferon straight away and am having very severe skin reactions. Would love to hear from anyone with the same problem or even better from someone who has lived through and it has improved.
Like the others that posted here I too have had the same or similar experiences. It took me ten years to finally get a diagnosis of MS. Do not let it discourage you however. As it was the case with me, I was injured at the time and we thought that the pain, numbness and tingling, etc was from the injuries I had.
I finally went to a different neurologist on my own and told him what was going on, these symptoms plus eye pain, headache, spasms, tremors, etc. .. He ran the necessary tests: MRI, EMG, EVP, CT scans. We found the lesions, nerve damage, optic neuritis that I was going through at the time.
So do not give up. It does take time. My neurologist told me that you have to go through a couple of relapses in a certain period of time and have noticeable symptoms at present or show up as having in the recent past. Hang in there!!
As far as any reactions to meds, YES I had a reaction to Betaseron. Had to go off of it. I was given prednisone to help with the hives etc.. I am taking Rebif and it has been working well for me. There are some good treatment choices out there to help minimize the symptoms as they come about.
Just remember to keep a good record of things as they occur, so that you can relay it to your doctor so that you can be treated promptly. You are your own best advocate.
I don’t know if I was much help. But please hang in there. I just wish that I was diagnosed earlier. Sounds like you are all on the right track.
My profile pretty much provides an overview of my story, so you’re welcome to check it out.
I’m currently on Betaferon, injecting every alternate day as per the norm.
I’ve recently posted some tips on injection "site reactions" as well as "fatigue" if it’ll assist anyone (definitely made a huge difference!)? (can’t remember exact dates, so one would have to search through, sorry).
Anyway, I guess we could all do with some optimism, motivation and support. Finding "normal" people who understand these insane symptoms let alone anything else can be challenging ... so please consider me a friend ... and contact me if / when required!
my first post ever!! - Multiple sclerosis forum - Symptoms
