*At long last I have a diagnosis ! It has taken five years and six Neurologists to get here. Today my new Neuro’ finaly told me that I have definte MS. I will be starting on Copaxone very shortly. Not quite sure how I feel, quite relieved and yet very nervous. Anyone alredy on Copaxone ? I would like to hear what you have to say about the treatment.
I have MS but I am not on Copaxone. I do know it is one of the 4 key drugs to treat MS. Obviously there is no cure for MS but hopefully being on a program may help slow down the rate of the disease progression.
Its unbelievable that its taken six years to get a diagnosis. Unfortunately with MS it is not uncommon. No doubt you will be relieved to have been given a diagnosis and you can join support groups and educate yourself as much as possible about the disease. Its the not knowing that is the hardest.
*Hi, Thanks for your message. I’m afraid I had an allergic reaction to the copaxone drug. My Neurologist took me off it after six weeks. All the injection sites came up into huge lumps and a rash broke out everywhere. I felt very depressed and really not well at all. After a couple of weeks rest, I am about to have the MS nurse come to my home and start me on Rebif injections. I’m hoping that this one will suit me better, and I now know not to leave it so long if another adverse reaction should occur with this drug. Thanks for your kind words of encouragement. Regards, Mary.
Not knowing really is the hardest part! I mean my MRI pointed to MS along with my first attack however it is not conclusive and I’ve only just begun my journey towards diagnosis. My spinal tap results are normal and thus although I have 10 lesions and I had numbness and ongoing horrible fatigue and now stiffness, there are no answers. Only time will tell and until then I remain in limbo. I’m very new at all of this since my first attack was two month ago and I’m so happy to have found this site, because a diagnosis will mean relief and you all understand that!
I am completely confused, but enjoying reading everyone’s posts. I first had a brain mri because I was having "heat wavey" vision in my right eye, depression, fatigue a bit of a leg problem. The mri showed some white lesion, about 4. Next I had the c-spine mri and it came back still consistant with ms in that there were some changes in the spinal column,.. I just got a call today and the dr told me that my spinal tap came back with a pattern he has never seen before. I had 4 of those all telling bands in my spinal fluid, but they found 10 of those same bands in my blood stream. The dr. is confused and wants me to go to his collegues in Boston. It is such anxiety waiting to find out. Of course this was on the phone and I was really wondering what he is thinking it is. If the bands were just in my spinal fluid it would definately be MS, but because they are also in my bloodstream, it is a mystery. Any advice would be much appreciated.
Diagnosis at last. - Multiple sclerosis forum - General
